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Kathy779
Kathy779 joined the group
2 months ago
Kathy779

Kathy779

,
  • Gender Female
  • Age N/A
  • Relationship N/A
  • Connection to MS
TD1234
TD1234 joined the group
1 year ago
TD1234

TD1234

Denton County, TX
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS
ivyrose
ivyrose joined the group
4 years ago
ivyrose

ivyrose

Carson, WA
  • Gender Female
  • Age 52
  • Relationship Single
  • Connection to MS I have MS
peggyh9
peggyh9 joined the group
5 years ago
peggyh9

peggyh9

Colorado Springs, CO
  • Gender Female
  • Age 62
  • Relationship Married
  • Connection to MS I have MS
refusetoquit
refusetoquit created discussion New identity equals identifying self
5 years ago
Getting a 'third wind' in the evening used to be in hindsight prior to my MS. Now, it's a daily 'trial and error', finding what works. The high parts to my day in 'energy',  are morning and evening after 7:00. There's a reason for this, arcadian rythum's, I don't know.........but learning this has kept my expectations in ck. I've tried ignoring this but it comes back to bite me.........it's not a control I can push to perform. My body has that control..........we've learned to live with each other.
refusetoquit
refusetoquit created discussion I get knocked down, but get up again.......maybe
5 years ago
I recognize that part of my identity is trusting in 'self', alway's finding my way out of the tunnel, untill MS. I could trust in myself untill my journey became harder, unsure of my walking........using  a cane and swallowing my pride. Who was I becoming?  Looking at pictures of myself going through that tough time, said it all..........I was smiling, but my eyes spoke volumes. I was no longer 'in the moment', in pictures. My sense of 'self', was fadin HOW CAN I HOLD ON...........going through motion's without 'feeling'. BY THE GRACE OF GOD, I woke up as my son almost turned left into traffic. A new driver and I had no emotion...........I didn't care what happened to me...........untill that 'moment in time'.............I"M BACK!!!......I CARE....a 'new' ME was born. I could approach life from another angle, one I've never had to explore before. For those that may read this, I hope something 'click's' into place as WHO or WHAT you are becomes muddy...... 
refusetoquit
refusetoquit created discussion LOOKING IN THE MIRROR
5 years ago
It was about 1 year after moving home to the parent's for help,........it was  4:00 in the afternoon and I had YET to look at myself in a mirror . Thirty year's working around mirror's, a Salon, and I've evolved into 'the unknown'. haha............when did this happen? In a power chair, unless I conciously roll to a small mirror on a table, I don't see myself. By this time in the day, the question before me now, was, "Do I look now  or let it ride?"  I did it..........a whole day not connecting to 'self'............so liberating. How we present ourselves to the world is important to me but doesn't define me. A 'wheelchair' IS NOT MY IDENTITY.
refusetoquit
refusetoquit replied to discussion RE:Navigating this site
5 years ago
IDENTITY IS A PROCESS.............I like , 'I am a woman, living with a diagnosis, that does not define me, & has unlimited potential in areas that I don't even know about til I continue to live & discover. '  I'm surprised by 'the depth' to which it goes and evolves. Starting with our parent's and their identity. Until MS slowed me down I never gave it a thought as to its potential. Thank's for your input!
waskyper
waskyper replied to discussion RE:Navigating this site
5 years ago
Hey Hi, this is a real fine thing to share about- I mean that when I first was diagnosed SO MUCH of me was defined by: where I lived, worked, gave birth to, married, was related to (by either birth or marriage), or maybe what I did or didn't do in school.I remember an old boyfriend asking me IF I could still run (after I told him of the diagnosis). When I said I couldn't, well....... I never heard from him again. Prior to that, we'd been good friends.Here are some thoughts on the way I experience it is w/ lots of people I know; there are those who don't "assume" that they "know" or can relate & they want to get to understand me now & they tend to be real friends. There are other people who seem to assume that cuz they knew me when this "situation" of "having been diagnosed" was thought of as just a "blimp on the radar of life" & eventually things would somehow, sometime calm down & return to "normal" (whatever that is- lol). - And..... There are VERY FEW that are still around that I have known since childhood. Likewise, there are few newer friends around that I consider true buddies.I have met many , cuz I tend to always be gregarious & not stay in to the "garbage of the diagnosis" yet, nonetheless; I STILL have found that cuz I can't walk, talk or just plain do like I used to, there are less people in & around me.I found though, that life has given a blessing through this unique experience called : the chronic illness. I had to learn to explore who the hell I really am. I believe in doing so, while I still feel lonely at times (especially when I think there is a value to staying stuck in a pity -party), I was forced to stop being stuck in what I was last year or 20 years ago & instead started striving to be the best I could in the day.I am happy to say that while it has been a heck of a struggle many days, the fruits of the labor are often extraordinarily good for getting some joy & solace.I am a woman, living with a diagnosis, that does not define me, & has unlimited potential in areas that I don't even know about til I continue to live & discover. I believe IDENTITY is a process to discover & one never gets the whole picture, even when we die. I believe that life is eternal, so..... I am not freakin'.that's my thoughts - thanks for letting me share
waskyper
waskyper joined the group
5 years ago
waskyper

waskyper

Lynnwood, WA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS I have MS
seenjo11
seenjo11 joined the group
5 years ago
seenjo11

seenjo11

Santa Ana, CA
  • Gender N/A
  • Age 53
  • Relationship Married
  • Connection to MS I have MS
refusetoquit
refusetoquit created discussion Navigating this site
5 years ago
HAHA, still learning, .......I dove in .........must be my 'self employment' for many year's wanting to manage SOMETHING!   I'll figure it out........ 
refusetoquit
refusetoquit created discussion IDENTITY
5 years ago
I feel 'what we do for a living' becomes a large part of our self worth. Having other interest's besides work  help's keep  balance as life throw's a 'hum-dinger'. In my disability, I'm thankful for my memories built in life. Never realized how much I did until DOING was done.
mitzy8401
mitzy8401 replied to discussion RE:Thing's I've learned in my new identity
5 years ago
This is my daily struggle. Right now, MS is ruling my life. Last year, I tore the cartilage in my right knee. How..I fell. In May of this year, knee extremely painful. Knee was swollen, I could barely walk. Had surgery, June 12th. Went for my surgical recheck in July. Still painful. Doc gave me a cortisone shot. The next morning, my right knee felt great! So happy! Just before my husband left for work, I fell down the Garage steps, landing on hands and knees. Immediately went back to orthopedic. I tore the cartilage in my left knee. I am still off work. Short term disability. I don't like the new me. I fall a lot. I don't remember stuff. Sometimes I mix up words. Sometimes, my emails do not make any sense, even after proof reading before I send. I worry a lot. Will my husband be able to help me. Will my daughter, who is 7, ever understand this crazy disease. Will I ever understand this disease. I was diagnosed in 2011. I find myself having some moments of clarity, but they are short lived. I feel stuck and it stinks!
refusetoquit
refusetoquit created discussion Thing's I've learned in my new identity
5 years ago
Well, haha, first I need to learn how to start conversation. lol My journey in 'my new dentity' started on a friday night, sitting on the couch, .......the wall's closing in on me. WOW, just like an old person, no energy for fun. I had to find new interest's. Still had my gardening, but even THAT changed. I was forced to stop working, 20 year's of managing a Salon and its frienship's gone. Didn't realize how much I had 'me' wrapped up in 'what I did for a living'. THE PACE GOT EVEN SLOWER. In a sense, life simplified. Sold most everything in order to move home.............new begining's....changed my focus to me, my health.  I started noticing the difference between the 'old' and 'new' me. I like me better now. MS forced my hand, I SEE with rose colored glasses. Only after reading "The Presence Process" , was it starting to be clear why it bothered me that I WASN'T BOTHERED BY MY MS ANYMORE. Sure, walking would be nice............until then.........I have a new identity. 
BeachBound
BeachBound joined the group
5 years ago
BeachBound

BeachBound

Austin, TX
  • Gender N/A
  • Age 49
  • Relationship Married
  • Connection to MS I have MS
refusetoquit
refusetoquit joined the group
5 years ago
refusetoquit

refusetoquit

, WI
  • Gender N/A
  • Age 56
  • Relationship Divorced
  • Connection to MS I have MS