Activity

mohler-john
mohler-john created discussion Welcome, Heather!
3 hours ago
Glad to you have you here. The MS Society offers a lot of info here: https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures Hope that when you feel comfortable we can get to know you and hang out. Have a good one.
mohler-john
mohler-john replied to discussion RE:National MS truly in the fight for us
3 hours ago
Renay, so good hearing your story! NMSS is definitely a great resource. So many services offered there, it's definitely worthwhile for everyone to go and have a look. Another I found lately is the Reeve Foundation. They offer a huge resource guide as a free download. Also guides for each state, tons of useful stuff: https://www.christopherreeve.org/living-with-paralysis/free-resources-and-downloads/fact-sheets-a-z/state-resources
mohler-john
mohler-john replied to discussion RE:Anyone else experimented with diet?
4 hours ago
You make a lot of sense to me, Renay. Folks tend to get very 'all or nothing' and defensive about their food. Them's fightin werds! I didn't know about the NMSS diet study – looking forward to that!
Renay
Renay replied to discussion RE:National MS truly in the fight for us
1 day ago
Agreed! After fundraising for WalkMS for a few years, you start to hear comments about how they fund BigPharma and aren’t looking for a cure. After my husband (at the ripe old age of 40) lost his ability to drive, we started looking into adaptive driving devices for his car. The expense was not something we were prepared for. We both work full time so we didn’t qualify for financial assistance anywhere but the MS Navigators helped him through the through the process and were able to offer some assistance.  Because of them, he now has some of his independence back and I couldn’t be prouder to fundraise for NMSS. 
Renay
Renay replied to discussion RE:Anyone else experimented with diet?
1 day ago
We tried the Wahls Protocol about a year ago, felt great after the initial “carb flu” but didn’t stick to it. With jobs and kids, life got in the way. I keep searching for some solid proof from others who have been on it awhile that it actually works to help motivate me to stick to it, but I haven’t seen an overwhelming response. The OMS community seems pretty sold on their diet but after reading all the Wahls/Paleo opinion, I feel meat is necessary for the brain so now I’m afraid to remove it! I feel diet/nutrition should play a bigger role in conversations doctors have with patients but that hasn’t been our experience. This is probably why! So many different opinions. They all seem to agree more fruits & veggies, less crap. I’m excited for the results of the NMSS funded study on Wahls/Swank diet  on MS symptoms but don’t think that will be out til 2020. Until then more kale & fish, less beer & pizza. 
-Heather-
-Heather- joined the group
1 day ago
-Heather-

-Heather-

Grandview, WA
  • Gender Female
  • Age 42
  • Relationship Married
  • Connection to MS
mohler-john
mohler-john replied to discussion RE:Welcome to the group, Larry T!
1 day ago
Larry, glad you're getting some of the help you need. There are services out there that many have no idea about – for many years, I sure didn't know about them when we really could have used them! Feel free to brainstorm around here, there are some sharp people around. But an excellent resource are the MS Navigators at 1-800-344-4867, or if you just want a supportive somebody to talk to, MS Friends 1-866-673-7436. Hope you're having a good day!
Larry-T
Larry-T replied to discussion RE:Welcome to the group, Larry T!
5 days ago
Thanks I  have been a little out of sorts lately I am doing better since I have gotten more  physical heI have been looking into the web address you sent. 
mohler-john
mohler-john created discussion Welcome to the group, Larry T!
5 days ago
Great pic of the snow leopard! Looking forward to meeting you. Meanwhile, if you have any questions about MS, there are a lot of free brochures here: https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures
Larry-T
Larry-T joined the group
7 days ago
Larry-T

Larry-T

Arlington, WA
  • Gender Male
  • Age 57
  • Relationship Married
  • Connection to MS
mohler-john
mohler-john created discussion Support the MS Society with your Christmas shopping
10 days ago
If you do any of your shopping online this year, you can support the MS Society through Amazon Smile. When you sign up, you can choose NMSS to receive a percentage of all of your purchases through Amazon. https://smile.amazon.com
mohler-john
mohler-john created discussion Anyone else experimented with diet?
22 days ago
Six years ago I changed to Swank/Overcoming Multiple Sclerosis diet, minimizing saturated fat: basically whole food plant-based and no oils (OMS does allow cold-water fish). At the time I felt there was nothing else out there for me. First two years of new diet, MRI showed zero new activity. The past four years, though, I cannot say the same. However I would not change back and love eating this way. Blood panels are perfect, chronic high cholesterol now perfect, regularity, no more sinus reactions or post-dinner drowsiness, and other good effects. Plus way cheaper and environmentally and ethically sound, but that's me. It helps that we like experimenting with food and new flavors.
mohler-john
mohler-john created discussion Self-defense in a wheelchair
25 days ago
There's a few good ideas here even for those not in a wheelchair. 12 minute video.https://www.youtube.com/watch?v=5vqqNNY51ZI&feature=youtu.be&list=PLtbcZsZIvZdIwQ7D_H-duguZO-q1LlgM5  
mohler-john
mohler-john replied to discussion RE:Travelling with challenges
27 days ago
Welcome to the board, mreany, and thanks for the great contribution! Detailed tips like yours are the most useful. (I especially like the one about finding newer hotels built after the ADA was passed, and also being "noticeably polite" – my wife was surprised with a first-class upgrade for that!) Looking forward to comparing more notes with you. I've also found practical info at Care Cure travel forum http://sci.rutgers.edu/forum/forumdisplay.php?66-Recreation-Sports-Travel-amp-Hobbies
mreaney
mreaney replied to discussion RE:Travelling with challenges
28 days ago
Hey, great topic!I travel with an electric scooter, which is absolutely necessary for the long distances involved in getting around modern airports. I have never had a problem with airlines when I travel. My system is to arrive at the gate very early and be noticably polite with the people who work there. They are so surprised not to have an irascible traveller barking at them that they go out of their way to accommodate. It also helps to have the airline's customer service number on your speed dial in case the "sweet" method doesn't work. But, I've never had to use it at the gate.Hotels, however, can be another matter. Hotels and motels think that as long as they have a grab bar in the bathtub, they have solved all the problems of accessibility. One way to avoid many problems is to get them on the phone well in advance of your arriving and give them the 3rd degree. Grill them about everything from the height of the door sill to the width of the bathroom door, to the location of the air-conditioning controls, and everything else that you can think of. You will probably have to ask to speak with the manager. Still, you will run into problems here and there. A good practice is to only stay in hotels and motels that were built after the ADA was passed. Buildings that have been "retrofitted" to meet ADA standards often miss the mark by a mile. This often means staying further out from the center of the city to keep costs downMark
mreaney
mreaney joined the group
28 days ago
mreaney

mreaney

Lawrence, KS
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS I have MS
mohler-john
mohler-john created discussion Welcome, lheckler62!
29 days ago
Glad you joined us for conversation, info or whatever's on your mind. If you have questions about MS, here is a list of free brochures on a lot of topics. Have a great weekend! https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures
mohler-john
mohler-john replied to discussion RE:Welcome alis0117!
1 month ago
Sharon, thanks for the great resource. We've been dealing with MS for years and I still found this useful for helpful ideas and looking at issues from my wife's perspective.
mohler-john
mohler-john replied to discussion RE:Travelling with challenges
1 month ago
Renay, welcome to our group and sorry this is so late. We've had our hands full trying to buy a wheelchair-accessible van. (STRESS.) But amen! Traveling or anything else in a wheelchair adds a whole layer of difficulty (so to speak). Thanks for sharing your Disney World and airport experience. Some places really get it, and others… not. I post a lot of this type of 'field reporting' on my blog. Please keep sharing your insights and experiences. You've got an audience here.
lheckler62
lheckler62 joined the group
1 month ago
lheckler62

lheckler62

, IN
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS