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silentjandro
silentjandro replied to discussion RE:I need ideas
15 days ago
TL/DR: Get the chair. If he doesn't use it, you can use it. It's that good.My Medline Guardian Bath Bench with Back blends really well with my bathroom. My occupational therapist at NIH strongly encouraged me to get it last year. The quality of my life has increased significantly since I started using it. For years I had stopped taking evening showers for fear falling due to fatigue. Not anymore. Every morning, I'm not afraid of thinking of something other than bathing while I'm in the shower. And if I need to cool down on a hot and humid day, I can just walk in, sit for two-three minutes with cool water, and I come out reinvigorated.img]https://www.amazon.com/photos/shared/oQJCtV1PQGSuKa8OIn8wvw.jdFfXNgHulZN2w5TH0Vzcj[/img]Attached is a picture of mine.null
silentjandro
silentjandro joined the group
15 days ago
silentjandro

silentjandro

Bethesda, MD
  • Gender Male
  • Age 45
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rtcardoza
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29 days ago
rtcardoza

rtcardoza

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1 month ago
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smsabdel

Washington, DC
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etherealem666

Winston Salem, NC
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lindsaynicole7

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saxgill

saxgill

Philadelphia, PA
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mrscottyp

Tampa, FL
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elaine857

elaine857

San Leandro, CA
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chloejack95

Dunmore, PA
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capitolcarols

Alexandria, VA
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Altofan1

Altofan1

Naperville, IL
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alicehoo10
alicehoo10 replied to discussion RE:I need ideas
5 months ago
Newmommie2003,  I thought I responded last night but I guess I never hit send 😔. What can I say. thank you for your post   You,  Jason and Maria where very helpful    I had the bathroom door changed out to a solid wooden door that my handyman found at a rehome store for 10.00. We switched so that we could add another grab bar to the door.  The door now also opens out so that I can get to my husband if and when I need to. This has given me some peace of mind. so now in our small bathroom we have 3 grab bars for John.  One on each side of the commode and one on the door between the commode and the sink.   I also added some carpets to the room and bought him new slippers which I insist he wear all the times. i am going to get a smaller chair that will fit in our bathroom   I can't reason with him as your husband did with you as I don't think he's able to     I don't know if it's the dementia or ms but he's not able to understand what I'm say  he just says " well" then goes on to something else  I appreciate your saying I'm a strong person, but I sure don't feel strong  I sometimes feel like a failure and other things too  being a caregiver for my husband is terribly hard   Watching what he goes through and knowing I can do nothing to help him but be there for him is so hard  it breaks my heart  I do it because of the man he was and is    I just wish I was better at taking care of him  I never feel like I'm good enough or do enough   I guess that's normal at least I hope so   He is such a good man  ok I'm ending  I'm getting to sentimental here  just wanted to let you all know that when I didn't know what to do to protect my husband you all came through and gave me ideas  thank you    I really appreciate you all Alice 
newmommie2003
newmommie2003 replied to discussion RE:Insight needed! Clean MRI’s but progressive MS symptoms for 9 yrs
5 months ago
Hi there,I am so sorry you are struggling. I had symptoms since 1990. I had mri's done and I had a small spot but they said it wasn't anything to worry about. I had various symptoms over the years and they could never pinpoint the source. In 2010, I had had enough. I was on 23 meds and had no diagnosis. I decided I needed to find doctors who could think outside the box. I changed all of my doctors all at once. I had mri's, spinal taps, a test on my muscles and nerves (this one was uncomfortable and painful sometimes, but it was a necessary test. I have had many tests. FINALLY, Thanksgiving Day, 2010, I had my diagnosis.It was a difficult process because my MS didn't present i. My body the same as most. Most of my lesions are on my spinal cord. Back whenit all started for me, they never looked on my spinal cord. It took a few years in order to do that. My active lesions were on my spinal cord, cervical neck area. If you are not getting the answers you are seeking, talk to your doctor and tell them that. Ask dor second opinions. If you still get nothing, you may want to consider changing to new doctors that might take a different approach to diagnosing you.You are your best advocate. Just keep pushing. Talk to your doctors openly and tell them how you feel. They may be able to refer you to other specialists.I hope you get some answers. You deserve that. Just keep fighting for yourself.let me know how it goes.Nycki
newmommie2003
newmommie2003 replied to discussion RE:I need ideas
5 months ago
Hi there,I have SPMS. I have the smae issue with a small bathroom. We need to make adaptions too. The first thing we are doing is putting on a pocket door.  I also have handle bars on my toilet. As for shaving, maybe put a mirror lower so that he can sit and shave. I am very stubborn, as my husband and daughter tell me. So I know how he feels wanting to do it his way. But sometimes, you may need to be firm and try and make him understand it is a safety issue and that you don't want him to get hurt. My husband had to do that with me. The other thing he said was that if I get hurt, it isn't just me that has to deal with it. And that he would hurt too. It was a little bit of tough love. But being stubborn like I am, it was the only thing that worked. It is a mental struggle to say we need help, or that we can't do things we used to or the way we used to. And I know for me, I hate feeling like I am a burden.You are a very strong person. It is awesome that you are by his side through all of the up and especially the downs. I hope things get easier for you.
maria1
maria1 replied to discussion RE:I need ideas
5 months ago
Alice, are there grab bars installed? Would a walker left by the sink help? so he would not have to bring one all the way in? I agree with Jason, take the door down it would give all of you more room, store it under the bed.   Also please think about calling the national ms society or go to the nmss.org site or the support page here and chat with someone who may have some other ideas for you. best wishes. maria
dkw
dkw replied to discussion RE:I need ideas
5 months ago
Alicehoo10; You are amazing. This ridiculous disease is So difficult. We really All take this day to day. I So appreciate your approach, What can be done and move on to the next. It sums it up. We all care and love you here.