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nickyrose78
nickyrose78 joined the group
7 days ago
nickyrose78

nickyrose78

, GA
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jweatherred
jweatherred joined the group
1 month ago
jweatherred

jweatherred

San Diego, CA
  • Gender N/A
  • Age 42
  • Relationship Single
  • Connection to MS
dzitkus
dzitkus joined the group
1 month ago
dzitkus

dzitkus

Rio Rancho, NM
  • Gender Female
  • Age N/A
  • Relationship Single
  • Connection to MS
jamie7776
jamie7776 joined the group
1 month ago
jamie7776

jamie7776

Jones Creek, TX
  • Gender Female
  • Age 44
  • Relationship Divorced
  • Connection to MS
maria1
maria1 replied to discussion RE:Feeling alone during exacerbations
1 month ago
hello jentspie,What are you doing to make yourself happy? As long as I am not in pain I am happy, or as close to happy as I can get. When I experienced an exaserbation I for sure wanted to be left alone to lick my wounds, I didnt even want anyone touching me, ugh. And at some point I came to the conclusion that I needed to work on me understanding what was going on, when I wanted others 'to get it', because they never would know what it is like, living with ms, they could never imagine what the brain is doing, so i gave up on them getting it and spent the time on me 'getting it.' My friend Joe is 92 and he says life goes on, and we ought be working, we ought not stop the clock and lock people up. He now, will not let his kids shop for him, he lives alone and wants to go out to get his own groceries and prescriptions. He was a political prisoner for seven years back in Poland back in the fifties.I have always found that writing works for me, I dont pay attention if it is good English, I just write what comes out of my head, and somehow that gets the computer part of my brain to figure out what i need to feel better. Sometimes I just write a word, have pencil and paper ready in every room. Emptying the head even though it doesnt make sense, makes sense, giggle, like throwing out the garbage.
jenstpie
jenstpie created discussion Feeling alone during exacerbations
1 month ago
I see a lot of these discussions aren't very active, but I'd love to swap stories and feel some connections!I'm 30 and single, lucky to have family in a state nearby and a good friend group.During bad periods like flare ups, depressive episodes, and exacerbations (like, the solumedrol, stuck inside for a month type bad), I realize friends and family don't quite get it. And I'm too exhausted and mad to educate them because in my head, they should spend all their time worrying about me! (and that isn't healthy, although they should try to educate themselves). I pull away heavily and assume no one cares, especially when a "friends with benefits" situation also disappears for days and doesn't have the audacity to check in.How do you find yourself coping when that happens? What are ways to either snap yourself out of it, communicate to your friends/family/partner, and all the while stop isolating yourself?The pandemic isn't making this any easier, and I'm surprised there isn't a whole discussion on single MSers during COVID.... but man, I feel super alone because to me, it feels like no one really gives a crap. And I would rather be happy, honestly.
jenstpie
jenstpie joined the group
1 month ago
jenstpie

jenstpie

Malden, MA
  • Gender Female
  • Age 31
  • Relationship Single
  • Connection to MS
cbedoya
cbedoya joined the group
1 month ago
cbedoya

cbedoya

San Luis, AZ
  • Gender N/A
  • Age 26
  • Relationship Single
  • Connection to MS
trinakat15
trinakat15 joined the group
2 months ago
trinakat15

trinakat15

Middleburg, FL
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damary
damary joined the group
3 months ago
damary

damary

Fontana, CA
  • Gender Female
  • Age 49
  • Relationship Single
  • Connection to MS I have MS
dggrandal
dggrandal joined the group
3 months ago
dggrandal

dggrandal

Miami, FL
  • Gender N/A
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pattersonkrist
pattersonkrist joined the group
3 months ago
pattersonkrist

pattersonkrist

Hendersonville, NC
  • Gender Female
  • Age 35
  • Relationship N/A
  • Connection to MS
artdeckco
artdeckco joined the group
3 months ago
artdeckco

artdeckco

Presto, PA
  • Gender N/A
  • Age 55
  • Relationship Divorced
  • Connection to MS
golgotha
golgotha created discussion Living alone MSers: What "innovative" ways have you cut down on things?
4 months ago
A foolish tiltle so let me explain what I mean.We've got a debilitating brain disease that often saps our energy and forces us to cut down on things that we want to do. Factor in possible waves of depression, possible pain or physical gimpyness -- etc., etc. -- and we have real reasons why we cannot get everything done that we want to get done.Since we're living alone, what sort of things often get tossed aside (or just thrown away!) from your priortized, to-do list?I'll give you one of my examples:I'm a special kind of "idiot." I often do things "the hard way" on purpose. Since I don't work, I know I have time on my side so I use it. Doing things "the hard way" often means doing things manually.So even though I could have a dishwasher installed, I deliberately chose not to. This forces me to think about how many dirty dishes I create, and it forces me to get up off my butt, stand by the sink (which is way too low since I'm 6'5") and wash the dishes by hand.Since I consider diet as critically important, I don't eat many frozen pizzas or prepared food -- that means actually cooking and creating dirty dishes.So one of the first things that go out the window for me when I'm feeling lousy is to not do the dishes. This can be me doing the dishes only once or twice a week. Hey, I've got 2 sink bowls, so I can fill one with dirty dishes, right?! :-)Of course, since I cook a lot of veggies in skillet-type dishes in my frying pan, that means my frying pan is often dirty since it's not getting washed.But it's not like I'm frying meat in that frying pan, and so the pan doesn't get that dirty. :-)However, to a third party watching my household habits, I would guess they'd think I'm insane! But I'm not getting sick with food poisoning, and I'm not really insane -- I just have an incurable brain disease.So what sort of weird habits or innovative ways have you cut down on things as you live alone at your house?What things do you do at your house that "make sense" to you that others might think is bizarre?(And yes, don't tell me, I know. One of these days I will "give up" and get a dishwasher installed. :-) 
golgotha
golgotha replied to discussion RE:I'm alone, no family, no caregiver, and ___s getting real
4 months ago
I can only sympathize with your plight and have no great answers.I got MS for Dummies and another book last week to learn more and was ready to throw and break things and cuss the ***** out.You don't say why you were so frustrated. I have to wonder if it's the reading problems. Or since I was once a technical editor (until I quit in disgust!) for a "...for Dummies" book on a computer topic, I have to wonder if it's frustration from those dumb books.But in terms of learning about MS, I'd strongly recommend Dr. Boster's YouTube videos. Being in a video format you don't have to read anything and just have to listen. And perhaps better, you can stop and/or replay them as needed.
brandyyyxx
brandyyyxx joined the group
4 months ago
brandyyyxx

brandyyyxx

,
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carolynrenee
carolynrenee joined the group
4 months ago
carolynrenee

carolynrenee

littleton, CO
  • Gender Female
  • Age 59
  • Relationship Divorced
  • Connection to MS
SoKaren
SoKaren joined the group
5 months ago
SoKaren

SoKaren

San Francisco, CA
  • Gender N/A
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