Activity

andrea281
andrea281 joined the group
1 day ago
andrea281

andrea281

Pueblo West, CO
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
Diana0324
Diana0324 joined the group
6 days ago
Diana0324

Diana0324

Juncos, PR
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Possible MS
katiedidit80
katiedidit80 joined the group
11 days ago
katiedidit80

katiedidit80

St Augustine, FL
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
brandee.holmes@gmail.com
brandee.holmes@gmail.com joined the group
15 days ago
brandee.holmes@gmail.com

brandee.holmes@gmail.com

Albany, NY
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
justin401
justin401 joined the group
27 days ago
justin401

justin401

Tumwater, WA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
nickyrose78
nickyrose78 joined the group
1 month ago
nickyrose78

nickyrose78

, GA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
ethyrum
ethyrum joined the group
1 month ago
ethyrum

ethyrum

Millersville, PA
  • Gender Female
  • Age N/A
  • Relationship N/A
  • Connection to MS
wikiwiki
wikiwiki replied to discussion RE:Médical marijuana
1 month ago
golgotha wrote: Having grown and used marijuana for medicine (MMJ) for decades, long before it was legal, I like to think I have some expertise in the topic.Science confirms its real MS medicine.IMO the key is the 100+ marijuana "cannabinoids" that are in the weed. THC and CBD are the 2 cannabinoids that are by far the most in volume and that everyone talks about, but the key is the combinations of the many other cannabinoids.You can smoke or vape MMJ, but there are caveats.Both smoking and vaping means an impact on your lungs. Smoking cigarettes is proven to speed up MS progression -- and you don't want that. It stands to reason that smoking weed isn't going to be a good thing.And vaping means that commerially-oriented, for-profit capitalist companies are gaming what ingredients to put into the vaping crap, with profit -- not health -- being their primary concern. IMO what's worse is that the vape stuff is often just made up of chemically-extracted CBD or THC and is lacking the huge variety of other cannabinoids.Thus, I'd recommend a "whole plant extract" to get the full range of various cannabinoids.The problem is that some MMJ "dispensaries" are just business fronts looking to try out models for when the state eventually legalizes marijuana. That's what the "medical dispensaries" were doing in my state in my opinion. (I'm not sure about PA.)The other problems with MMJ dispensaries is that they treat weed like a marketing gimmick -- constantly switching between various new strains, all labeled with tooty-fruity marketing-driven names, all done to generate hype and con customers into chasing "what's new."GW Pharmaceuticals in the UK makes [url=http://https://www.gwpharm.com/healthcare-professionals/sativex]Sativex[/url], an actual whole plant marijuana medicine which is sprayed into your mouth. That's been proven by science to work and is legal in places like the UK and Canada. But unfortunately our out-of-touch, non-representative-of-We-the-People federal gov't prevents that medicine from being sold here in the US.As others have mentioned, you can get edibles and use MMJ in other forms. Things like marijuana "hash oil" you can wipe under your tongue and it works well. And if you're a baker or like cooking you have all sorts of options.Look for whole plant extracts. You'll note that different strains have differing impacts. Some will work for spasticity, some will aid in sleep, while others will generate energy in ways that are very effective.Since our gov't hinders doctors and science from doing real research -- the US gov't still falsely claims marijuana has no medicinal value -- you're going to have to do research on yourself.But hey, you've got MS. You should get used to do "research" on yourself. :-)Hi, I've had ms ever since I remember and finally got scared 22 yrs ago. I'm really wishing to have medical marijuana that covers muscle spasms ,chronic pain and bouts of so much else.  I don't like getting a high. currently using 1 to 1 cbd/thc oil..its okay but quickly fades. would love to cover my constant pain. I'm currently reducing my dosage of ultram that I've used for 22 yrs.. I'm back to not being able to walk much and doctor doesn't seem to worried.our area has only two neurologist and both are basically hard to deal with. I wish old Dr.didn't retire but he needed to. 😕Thank you for your information!
wikiwiki
wikiwiki joined the group
1 month ago
wikiwiki

wikiwiki

Eureka, CA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
llstolpe
llstolpe joined the group
2 months ago
llstolpe

llstolpe

Mukwonago, WI
  • Gender Female
  • Age 42
  • Relationship Married
  • Connection to MS
capitolcarols
capitolcarols replied to discussion RE:MS Hug
2 months ago
bardelys7811,A MS hug (spasm) usually doesn't last very long before it is over.  But, be careful that it is a MS hug and not a heart attack.
bardelys7811
bardelys7811 created discussion MS Hug
2 months ago
I think I'm having an MS hug. Has anyone else ever had one? What did you do for it? 
bardelys7811
bardelys7811 joined the group
2 months ago
bardelys7811

bardelys7811

Arvada, CO
  • Gender Female
  • Age 58
  • Relationship Married
  • Connection to MS
kcovarrubias
kcovarrubias joined the group
2 months ago
kcovarrubias

kcovarrubias

Torrance, CA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS I have MS
MrsT2015
MrsT2015 replied to discussion RE:Stopping Your MS Therapy
2 months ago
I was on copaxone also fir years, never really saw a difference but my body hit so sore from the shots 3x a wk that without my drs knowledge I decided on my own not to renew my prescription and let my body heal, I haven't been back to my neurologist but need to make an appointment to have my annual MRI,  I am currently diagnosed with rrms but last year my scan showed possible progression so I think without being on any ms meds and my symptoms getting worse it may be a giid idea to go in, most times I already know the outcome of my appts so it gets pretty depressing bcz it's the same old thing but physically I feel like crap and 20yrs older than I am, I'm gonna ask about that medicine you were told about by the other person but if it's a pill I prob cant take it bcz my labs always show elevated liver levels when I try diff oral meds, I feel stuck mostly all the time so in th he end that's why I've decided to get off the shots and try to embrace my ms as i know it's a part of me and i must live myself fir who i am or at least whom I've become, good luck to you, take care
MrsT2015
MrsT2015 joined the group
2 months ago
MrsT2015

MrsT2015

Columbus, GA
  • Gender N/A
  • Age 50
  • Relationship N/A
  • Connection to MS
lindsaynicole7
lindsaynicole7 created discussion Intimacy and Sexuality Survey
2 months ago
Hello everyone,My name is Lindsay Richards and I am a doctoral student completing a research study on the impact of progressive neuromuscular disorders (PND) on intimacy in individuals with PND and their partners.If you are interested in participating, the survey can be found at the following link:https://www.surveymonkey.com/r/OTintimacyThe survey will contain both open- and close-ended questions about relationships as well as what you would look for in a program addressing these topics. My hope is to further understand the impacts of these diagnosis on your relationships and intimacy and develop a program from that information.Inclusion criteria for this study include adults over 18 years of age with Parkinson’s disorder, Multiple Sclerosis, Huntington’s disease, and Amyotrophic Lateral Sclerosis and their partners. The survey should take no longer than 25 minutes.If you know anyone who meets criteria for inclusion and would be interested in taking the survey, I would greatly appreciate if you could forward them the survey link or my information!If you have any questions, please contact me at: l.richards@usa.eduThank you for your time and I appreciate your interest in participation in this survey.
lindsaynicole7
lindsaynicole7 joined the group
2 months ago
lindsaynicole7

lindsaynicole7

, CA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
jjm96y2k
jjm96y2k joined the group
2 months ago
jjm96y2k

jjm96y2k

Brooklyn, NY
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS